Whose going to be sporting the latest fashion trend with me?
Involuntary Breath Holding Spells is a medical condition affecting 5% of otherwise healthy infants, toddlers and children. My son is in that percentage. These spells which are most commonly triggered by upset or injury cause children to stop breathing, have seizures, and lose consciousness. Not only do they suffer these physical symptoms but they suffer from the lack of understanding of this condition. They face glaring looks of disgust from the general public, name calling, and condescending comments. Parents live in fear of losing their child, and leaving their child’s side. In a study published in the Medical Journal of Pediatrics, research showed that parents who have children who suffer from Severe Breath Holding Spells suffer more stress and anxiety than those parents whose children have a known seizure disorder, or parents whose children are healthy, Mattie-Luksic, M., Javornisky, G., & DiMario, F. r. (2000). Assessment of stress in mothers of children with severe breath-holding spells. Pediatrics, 106(1 part 1), 1-5. This stems from the feelings of incompetence from not being able to help your own child.
These children and their parents should not have to stand alone! It’s time we all stand with them, and let their voices be heard! On Saturday February 1, 2014 a booster campaign will be opening up for Involuntary Breath Holding Spells Awareness. During this month long campaign you can purchase an Involuntary Breath Holding Spells Awareness t-shirt for $15.00. Products will ship at the end of the campaign, and a portion of the sales will go towards spreading awareness for Involuntary Breath Holding Spells. We are working on getting information pamphlets on Involuntary BHS distributed to pediatrician offices, and ER’s, so parents no longer leave the hospital with false information or no information on Involuntary BHS. Our second goal is to work better information and training of Involuntary BHS into the curriculum for current and future medical staff. Will you stand with us? Will you help our children’s voices be heard? On February 1, 2014, visit www.booster.com/bhsawareness and order your Involuntary BHS Awareness t-shirt! Follow our progress with spreading awareness at www.BHSAwareness.com. Thank you for your support!!
**** For those of you who have been following along, you know this cause is very near to my family. My Hive (aka my family) will be proudly sporting our IBHS shirts in support of my little bee! The first time my son experienced a IBHS episode I was scared out of my mind and was discharged from the hospital with a handout on information about IBHS that was completely irrelevant to a infant with IBHS. It left me confused, worried & on a mission to find answers. My mission lead me to Jennifer's site and like her I want to help educate others and give support to other parents going through this frighting condition. To those parents, I leave you with this...You will feel alone BUT YOU CERTAINLY ARE NOT ALONE...